Sarah Katerle (formerly Lemme) here - SHS ’99. "I am seeking your support for a benefit event I’m putting together for Huntington’s disease. My husband is in the early stages of this disease and our 2 year-old son is at risk."
Huntington’s disease (HD) is a devastating, hereditary, degenerative brain disorder that diminishes the affected individual’s ability to walk, think, talk and reason. Eventually, the person with HD becomes totally dependent upon others for care, profoundly disrupting the lives of entire families emotionally, socially and economically. More than 30,000 Americans are actively afflicted with HD and more than 250,000 are “at risk” of inheriting the disease from an affected parent. HD strikes as many people in the world as hemophilia, cystic fibrosis or muscular dystrophy.
On Thursday, June 13, 2013, the Huntington's Disease Society of America (HDSA) will be hosting a special benefit concert at The Red Lion in Manhattan to raise funds and awareness for HD. The event will feature and honor my husband, a talented guitar player. Other talents will include 2012 David Di Donatella award-winning artist Michael Brunnock and Blues Hall Of Fame member, Jerry Duggar.
I’ve attached a Press Release as well as the event poster for more information. Thousands of families, including mine, depend on the support and services provided by the HDSA. I am really hoping that you can help me spread the word and make this event a huge success.
Link to Facebook event: https://www.facebook.com/#!/events/172287386260861/
Link to purchase tickets: www.hdsa.org/nycrocks
Newly created Twitter account: @HDSA_NYRegion
Please feel free to reach me.
New York/New Jersey Regional Development Manager
Huntington's Disease Society of America
PO Box 1191
Penfield, NY 14526
585 643 5239
Help for Today. Hope for Tomorrow
Ted Spencer, Jay Shulman, John Moses, Thom Pernice, Andy Kreeger and Mike Cefola.